About Hannah's Hope
Hannah came in to our lives in 2009. As she continued to grow into a beautiful little girl, we soon noticed significant developmental concerns. This began our three year journey, involving numerous doctors and tests. We advocated for genetic testing and learned our little girl had a rare genetic disorder called Angelman Syndrome.
Having a child with a severe developmental disability brings with it many challenges. Unfortunately, it can be extremely hard to find the right support systems, especially when your child has a rare disorder that most clinicians and medical professionals are unfamiliar with. One of the biggest challenges we faced as parents was to find a community of support to help us with our daily struggles that were mentally and physically exhausting.
Hannah’s Hope Foundation was originally created to bring families together who are facing similar challenges around raising a child with a diagnosis of Angelman Syndrome. Our vision is to educate, enlighten and empower families who are raising individuals with complex communication needs (CCN) - which has evolved beyond Angelman. We strive to provide practical and personal educational opportunities for parents and professionals to understand, explore, and implement augmentative & alternative communication (AAC) and literacy strategies/supports.
Sarah Rivard
President, Hannah’s Hope Foundation
Having a child with a severe developmental disability brings with it many challenges. Unfortunately, it can be extremely hard to find the right support systems, especially when your child has a rare disorder that most clinicians and medical professionals are unfamiliar with. One of the biggest challenges we faced as parents was to find a community of support to help us with our daily struggles that were mentally and physically exhausting.
Hannah’s Hope Foundation was originally created to bring families together who are facing similar challenges around raising a child with a diagnosis of Angelman Syndrome. Our vision is to educate, enlighten and empower families who are raising individuals with complex communication needs (CCN) - which has evolved beyond Angelman. We strive to provide practical and personal educational opportunities for parents and professionals to understand, explore, and implement augmentative & alternative communication (AAC) and literacy strategies/supports.
Sarah Rivard
President, Hannah’s Hope Foundation